As I have mentioned on my Twitter/Facebook pages, I have BIG & EXCITING NEWS TO SHARE!!! So without further Adieu....As of yesterday evening, The LFA (Lupus Foundation of America), has approved the CHRONICLYsILLy blog to be listed on their site, and as a link on their blog, "On the Road to a Lupus Cure." There are several other wonderful blogs listed on their page as well, some more serious than others, but all very well written and informational pages (if you have time, check out the LFA's, their posts are chockfull of useful information, up and coming press releases, updates on Congressional bills that affect those of us who are Chronically Ill and healthcare and so much more!)
Now that our "BIG & EXCITING NEWS" (well big to me at least! I hope you all are just as enthused!) has been released, I want to introduce you all to my boyfriend, Pred N. Isone(he's foreign) or Prednisone (which is what he usually goes by). We've been in an on-and-off relationship over the past year, but we've been going steady, consistently, for the past 7 months. Things started out okay in the beginning, he helped me through a tough time when my Platelets dropped suddenly, and was able to support me and help get them back up into a safe and eventually normal range, I felt full of energy and my joints had never felt better ...but as things went on, I was tired of Pred. (thats what I call him for short, kind of like a pet name, if you will), being around all the time, always getting me sick (not to mention he's got a sweet tooth, and easily packs on the pounds if your not careful)... the constant doses of him morning, noon, and night was definitely starting to wear me down and take its toll. So eventually, I started to wean down the amount of time I spent with him (as you do in any normal relationship... right?). He would be around for breakfast and dinner, and then just came around for breakfast, but I was still sick of him...Everything he did annoyed me, he made my stomach upset, gave me constant headaches, and every time i weaned down the amount of time I spent with him, my joints ached, I was stiff and swollen (it was like how people can predict the weather, well I could predict when pred. was around and when he wasnt so much, based on how my joints felt)... So now, as you can plainly see, I'm in quite a predicament or "pickle" if you will. With Pred. around, I feel pretty good, but he causes so many problems that eventually get the best of me and wear me down, but when he's not around...My joints hurt, I wake up stiff and achey, and my overall fatigue increases too. What to do? I currently only see Pred. for breakfast, but I want to break up with him for good, the trouble is, he always seems to find his way back into my life. But I just met this new guy, Cell (short for Cellcept, I have a thing for foreign guys... what can I say) and the more he's around the better I feel, so maybe I can get rid of Pred. once and for all!
Now that you all know of my love-hate relationship (I'm sure some of you have had your own, probably even with Pred, I always got the feeling he wasn't always faithful!) I will leave you with our daily Jolt-of-Java:
Jolt-of-Java: 100% of the medications you're not willing to take, won't help you feel better, & remember, the elevator to "feeling better and getting healthy" is out of order, you'll have to take the stairs... one step at a time. (a tribute to a Joe Girard quote)