These last few days have been busy ones to say the least, and today I am off to watch my dear little friend from a few weeks ago, Robbie. I adore this little boy but I am feeling less than stellar and certainly do not have the energy...But his mom is depending on me, and sometimes you just need to pull yourself up by the boot straps (or perhaps for some of us... The Compression stockings!) and saddle up. So I am putting my best foot forward, and with the help of a smile and some Java( ok... a lot of java) I am hoping I can make it through the day (and to my Graduate studies advisement appointment to register for classes afterwords!) But my goodness do I have a lot to share with all of my CHRONICLYsILLy guys and gals out there... as these last few days have been quite the adventure (isn't that always the case with Lupus/Chronic illness?)
From an uneventful and unproductive trip to the "Club ER"(where B-T-dubs aka By the way...Where i was less than impressed when I was not provided with the always tasteful and stylish hospital socks with grips...Don't you worry I'll be filing a complaint!) where we found signs hanging around the ER that said, "Soak up the sun" and had a very light hearted and happy theme...Little to their knowledge... as a Lupus patient I could not help but find these signs ironic and quite humorous, however my morning yesterday was quite a difficult one (working on only a few hours of sleep).
But my poppa bear and I took charge and scheduled an appointment to see my Rheumatologist in his Huntington office (the only office of his 4, that is not within 15 minutes of my house...but rather 45 minutes haha isn't that always the case!) But nonetheless we were happy to get in to see him and to get checked out... And little did we know it but our adventures that began the night before were just beginning to get interesting. We began our day like any other, a ran a few errands and we popped on over heading in the direction of my doctor's office...And as usual, I was in need of a cup of Coffee (don't worry i only got a medium... You should be proud!) so we stopped at a near by 711. I have an unhealthy obsession with 711 coffee because like Burger King aka The BK lounge, I can have it "my way!" Which for any avid coffee drinker is always a bonus! And what did we find upon entering said 711...Why the most wonderful Cup holder I ever saw! It simply stated, "WAKE UP!" in bold lettering. I immediately thought of our Jolts-of-Java, and we took one and snapped a quick photo!
We continued on our adventures, travelling through my poppa bear's old neck of the woods, and he reminisced, showing me all of the old places he used to go, "back in the day!" Which as you all know, is an expression only old people use (sorry pops I couldn't resist...You might
be old but you've sure got me beat...pill count talleys: KP (me)-21, poppa bear-0. ) So we continued to venture to the Rhemy's and finally arrived to a lovely and quaint office, quite different from his offices out here near my home...And I was so pleasantly surprised with all of the butterfly decor! (coincidence... I think not! He is obviously campaigning for Lupus awareness in a subtle yet tasteful way!) We waited no more than 10 minutes (that's a first) and were seen fairly quickly by the doc. My legs were doing their ridiculous rash, mottled nastiness again, and luckily it was out in full force in all it's inflammatory glory on display for my doc. With one look he new exactly what was going on...POW! BAM! PUNCH! LADY LORD LUPUS had struck again (cue evil theme song music...DUH DUH DUH...), this time attacking the vascular system (add it to the F*cking list!) .... he diagnosed it as Levido Reticularis Vasculitis...And I be your thinking...Well how do they improve that? Oh No... That's right the dreaded Prednisone has once again entered my life in high doses...along with an increase in Cellcept, and the doc is hopeful that this will knock Lady Lord Lupus on her @ss once again!
We left with prescriptions and a ticket good for one venus doppler(to ensure no clots in my veins from the vascular inflammation) and headed back on our long trek home, with a pit stop at Walmart to fill my new prescriptions... and of course it was a zoo...Dreading even leaving the car as the parking lot was a disaster area...My pops dropped me off at the door and headed in to drop them off...As I entered the store I was bobbing and weaving through the obstacle course of carriages, baby strollers and clueless people dazing around aimlessly and walking with their heads down as they texted away... and BAM! In the midst of all of my dodging, I apparently was not quick enough and took a shopping cart to the hip bone... that not only left a lovely welt/bump and swelled up, but actually broke the skin...AWESOME (can you sense my sarcasm...Let's just say at this point I was DONEZO! with my Monday and had a bad case of the Mondays to say the very least!)
I'm off now to go babysit my little buddy (with handfuls of medications, and way to much coffee and prednisone in my system...I'm not sure if I'm wired from the combo of the steroids and caffeine, or just so overly exhausted that I'm semi-delirious from the lack of sleep and the events that have unfolded in the past 48 hours...) But of course as always before I do, I will leave you with my page of hope-Nothing is Kim Possible, please stop by, sign the guest book and make a contribution, every little bit helps!(All proceeds to the LFA!) and the Ticket and Table Information for the Buttefly Gala (please contact me for more details and how you can help/contribute!) And of course our Daily Jolt-of-Java, lord knows I need this morning!
Jolt-of-Java: "Happiness is the only good. The time to be happy is now. The Place to be happy is here. The way to be happy is to make others so....and remember...It's easy enough to be pleasant, when life flows along like a song...But the man worthwhile is the man with a smile...When everything goes wrong..."-adaption from unkown