Someone you know has lupus... OH SH*T-- its me! -And I can almost guarantee that I am more frightening than any ware-wolf, witch or goblin that will ring my doorbell today! Let's just say on a scale of 1-frightening, I've got this guy (inset left) beat without him even offering me any competition! Maybe I'm exaggerating, but you get the picture! I am definitely the scariest thing in my neighborhood!
I can gaurenntee you that- Waking up with my lupus rash in full force (at 5 am mind you- for NO REASON- thank you lupus) and swollen joints, with minimal hair covering my head ( and by minimal i mean none-thank you lupus again for that one- ) I think i might scare more trick or treaters away today than the other way around? No "Boo" or scary antics necessary- apparently waking up whilst flaring is quite a frightening look- luckily It's just in time for Halloween (Good timing Lupus- as always) Talk about not needing a costume- This takes it to a whole new extreme- but in honor of the holiday and how much i love holidays and the holiday season in general- I have decided to dress up as.... drum roll please...A doctors worse nightmare!
That's right ladies and gents- yours truly is ( mind you I am a very good and obliging patient that takes her meds, plays by the rules (most of the time) and does what her doctors order! But being a lupus patient-basically qualifies you for this category-simply because of the endless unknowns and never-ending new symptoms the disease presents!)-->And the best part is - no costume required! From the moment they take my oxford english dictionary resembling chart out at one of the many of my numerous specialists/ER doctors files- I leave a path of confusion, destruction and sheer befuddlement wherever I take my lupus-writhed body! From tilted heads of the neurolgist, to baffled looks upon the face of my rheumatolgist (always a comforting sight in deed)- I am a doctors worse nightmare. To have a disease -where "you dont look sick" can be tricky enough!
...But with every one case presenting itself differently, and mine being no exception- I seem to have a quite confusing case if I do say so myself- mind you I judge this based on the looks, the discussions that occur outside the door while i wait in the the examination room (my hearing is fine thank you!- at least I think it is- What did you say?) not that they say anything negative or insulting by any means, I have wonderful doctors that I truly love dearly and who truly listen to what I say but - nonetheless it is no less frustrating to have an illness that even specialists and doctors that study the disease for years can bearly decipher.
With that being said- I am the spookiest thing in this neighborhood this halloween no ghouls- goblins- or witches will give me competition today! Happy halloween!
Jolt-of-Java: "Attitude is a little thing that makes a big difference"- Winston Churchill