Benlsyta infusion #3
Yesterday marked my third infusion of Benlysta, the last of the loading doses (3 in the first month), and now I will receive them every month, which seems much more doable! I must say you get used to them rather quickly, aside from the day after hang-over effect that consists of a headache and some aches and pains and the usual fatigue (which could just be the Lupus too... hard to decipher...) the infusions thus far are going well. I am not sure I am feeling much of a difference yet, but the doctor and infusion nurse (whose a doll), say to give it time and gradually, hopefully, there is a gradual improvement. They monitor these slight changes with the pre-infusion paperwork that consists of a questionnaire, that goes through all of your extremities and joints asking how you are feeling, how the pain is in each, and how you believe your condition(s) are affecting your everyday ability to function/quality of life. By doing so they may notice slight improvements that you may not right away. Like many therapies and drugs used for Lupus, it is a waiting game, generally speaking, and could take a few months before seeing improvements, however some may find relief sooner, as each and every one of us will respond slightly to massively different (As with any medication), to each their own.
After an hour and half (approx.) the infusion was complete, I was drowsy from being up early and the pre-infusion Benadryl, and was ready to call it quits for the day, but had some running around to do with my pops, so we powered through and then to the cardiologist's office as it was the day of docs yesterday, and I was so happy when it came to an end and I was in my bed relaxing for the evening!