Infusion #2- My Journey with Benlysta!
Good Afternoon to you all, and I hope you are all preparing for a happy and healthy (I use the term loosely, but nonetheless...) Thanksgiving coming this week! My Turkey Day week started off with my second infusion of Benlysta, the 2nd of the first 3 that are given in the first month as the loading dose, to jump start the process! After that it will be given once, monthly- now I am no fan of infusions but for the timing being it certainly beats adding another pill into the already ridiculous routine ( at last count it was 32 pills a day- ABSURD and working to get that number way down -beginning with getting off the dreaded and yet beloved- PREDNISONE!)
The infusion, however is made so much more pleasant due to the lovely nurse Debbie, whose bedside manner is immaculate, and who truly makes you relaxed and comfy for the entire process ( I mean the Pre-infusion Benadryls help take the edge off too- LOL)! Things went smooth with the infusion, and I was a bit concerned as to whether or not I would be able to get my second infusion as scheduled due to a recent stay at CLUB H (the trendy Hospital in town). It's all the rage this fall season and has all the latest trends from the hole-y hospital gowns that apparently are only made on triple XLs, to the latest in food (on the all liquid diet- it was all the rage in hollywood too last year!), from yogurts to soup broths what more could a gal want! But my colitis is calming down, I am on the mend and we were able to get the go-ahead from my Rheumatologist to move forward with the infusion!
Once I was hooked up to my mock-tail (medical cocktail), it took about an hour from start to finish, and I was out the door and on my way home to sleep off the Benadryl (it always makes me a little more Loopy than usual!) And aside from the day after mini-hangover feeling and headache I have had minimal side effects from the Benlysta and am very happy with how I have tolerated it thus far. My next infusion, the last of my loading dose is schedule for December 5th, 2011. Wish me Luck and have a fantastically silly Thanksgiving full of spoons!